Partners
Central Coordination & Statistics Centres
UK
Prof Helen Dolk h.dolk@ulster.ac.uk
UK
Population Health Research Institute, St. George's University of London (SGUL), Cranmer Terrace UK SW17 0RE
Prof Joan Morris jmorris@sgul.ac.uk
Three types of partners:
This document provides descriptions of congenital anomaly registries which contribute to the central database.
This document provides descriptions of healthcare databases which contribute to EUROmediCAT.
Congenital Anomaly Registries contributing to central database & Healthcare Databases
Organisations that contribute both through congenital anomaly registries and healthcare databases are highlighted in green on the map and below.
Belgium, Antwerp
Provinciaal Instituut voor Hygiene, Kronenburgstraat 45, B-2000 Antwerp, Belgium
Dr Vera Nelen vera.nelen@provincieantwerpen.be
Croatia, Zagreb
Klinicka bolnica Sestre milosrdnice, Klinika za djecje bolesti Zagreb, Klaiceva 16, CRO-10000 Zagreb, Croatia
Dr Ingeborg Barisic ibarisic@kdb.hr
Denmark, Odense
Paediatric Department Hospital Lillebaelt, Kolding Sygehusvej 24, DK -6000 Kolding Denmark
Dr Ester Garne ester.garne@rsyd.dk
France, Brittany
University Hospital, Department of Neonatology, Rennes, France
Dr Florence Rouget florence.rouget@univ-rennes1.fr
France, Ile de la Reunion
Registre des Malformations Congenitales de la Reunion, Chu Sud Reunion, St Pierre, Ile de la Reunion
Dr Hanitra Randrianaivo hanitra.randrianaivo@chu-reunion.fr
France, Paris
INSERM U953, Hopital Saint Vincent de Paul, 82 av Denfert-Rocherau, 75014 Paris, France
Dr Babak Khoshnood babak.khoshnood@inserm.fr
Nathalie Lelong - Acting Registry Leader for remaPAR (Paris Registry of Congenital Malformatoins) nathalie.lelong@inserm.fr
Germany, Mainz
Universitatskinderklinik Mainz, Langenbeckstrasse 1, Postfach 3960, D-55101 Mainz, Germany
Dr Awi Wiezel awi.Wiesel@unimedizin-mainz.de
Germany, Saxony-Anhalt
Dr. Anke Rissmann anke.rissmann@med.ovgu.de
Ireland, Cork & Kerry
Health Service Executive, Dept of Public Health, Floor 2, Block 8, St Finbarr's Hospital, Douglas Road, Cork, Ireland
Dr Mary O’Mahony MaryT.OMahony@hse.ie
Ireland, South East
Health Service Executive, Dept of Public Health, Lacken, Dublin Road, Kilkenny, Ireland
Dr Catherine Lynch catherine1.lynch@hse.ie
Malta
Malta Congenital Anomalies Registry, Directorate for Health Information and Research, G'mangia Hill, G'mangia, PTA 1313, Malta
Dr Miriam Gatt miriam.gatt@gov.mt
Netherlands, North
University Medical Center Groningen, P O Box 30.001, 9700 RG Groningen, The Netherlands
Hermien de Walle h.e.k.de.walle@umcg.nl
Poland
Poznan University of Medical Science, Dept of Medical Genetics, Ul. Szpitalna 27/33, 60-572 Poznan, Poland
Prof Anna Latos Bielenska alatos@amp.edu.pl
Poland - Wielkopolska
Poznan University of Medical Science, Dept of Medical Genetics, Ul. Szpitalna 27/33, 60-572 Poznan, Poland
Prof Anna Latos Bielenska alatos@amp.edu.pl
Spain, Basque Country
Registro de Anomalías Congénitas de la Comunidad Autónoma del País Vasco (RACAV). Departamento de Salud del Gobierno Vasco; Dirección de Planificación, Ordenación y Evaluación Sanitarias; Donostia-San Sebastián 1, 01010 Vitoria-Gasteiz (Spain)
Luis Echevarría González De Garibay ljechevarria@euskadi.eus
Switzerland, Vaud
Registry EUROCAT-Vaud, Department of Woman-Mother-Child, Maternite, CH-1011 Lausanne, Switzerland
Dr Marie-Claude Addor marie-claude.addor@chuv.ch
Ukraine
OMNI-Net Ukraine Birth Defects Program, 36, 16 Lypnya Str. Room 709, Rivne 33028, Ukraine
Dr Natalya Zymak-Zakutnya zymakn@gmail.com
Finland
Finnish Institute for Health and Welfare (THL), Mannerheimintie 166, Helsinki, FI-00271
Mika Gissler (Medical Birth Register) mika.gissler@thl.fi
France, Toulouse
University Hospital Center of Toulouse (CHU de Toulouse), Unité Médicaments, Grossesse et Allaitement
Dr Christine Damase-Michel christine.damase-michel@univ-tlse3.fr
Norway
PharmacoEpidemiology and Drug Safety Research Group, University of Oslo, Postboks 1068 Blindern 0316
Prof Hedvig Marie Egeland Nordeng h.m.e.nordeng@farmasi.uio.no
Sweden
Institution of Clinical Sciences, Dep of Obstetrics and Gynecology, University of Lund, Biskopsgatan 9, 223 63 Lund and Swedish National Board of Health and Welfare, Stockholm
Prof Karin Källén karin.kallen@med.lu.se
UK
University of Bath, Claverton Down, Bath, UK, BA2 7AY
Dr Rachel Charlton r.a.charlton@bath.ac.uk
Congenital Anomaly contributing to central database & Healthcare Databases
Italy, Emilia Romagna
Registro IMER - IMER Registry (Emila Romagna Registry of Birth Defects), Center for Clinical and Epidemiological Research, University of Ferrara, Azienda Ospedaliero - Universitaria di Ferrara , Corso Giovecca 203, 44121 Ferrara (Italy)
Ms Amanda Neville nvm@unife.it
Italy, Tuscany
Congenital Defects Registry of Tuscany, Epidemiologia delle Malattie Rare e delle Anomalie Congenite (Epidemiology of Rare Diseases and Congenital Anomalies), Istituto Fisiologia Clinica CNR/Fondazione Toscana "G. Monasterio", Via Moruzzi 1 56124 Pisa, Italy
Dr Anna Pierini apier@ifc.cnr.it
Spain, Valencian Region
Dr Clara Cavero Carbonell cavero_cla@gva.es
UK
Congenital Anomaly Register & Info Service, Level 3 West Wing, Singleton Hospital, Sketty Lane, Swansea, Wales, UK, SA2 8QA
Mr David Tucker david.tucker2@wales.nhs.uk
Swansea University, Singleton Abbey, Singleton Park Campus, Sketty, Swansea, Wales, UK, SA2 8PP
Dr Sue Jordan s.e.jordan@swansea.ac.uk