Partners
Central Coordination & Statistics Centres
UK
EUROmediCAT Coordinating Centre, Ulster University, Room BC-04-167, 2-24 York Street, Belfast, BT15 1AP
Prof Helen Dolk [email protected]
UK
Population Health Research Institute, St. George's University of London (SGUL), Cranmer Terrace UK SW17 0RE
Prof Joan Morris [email protected]
Three types of partners:
This document provides descriptions of congenital anomaly registries which contribute to the central database.
This document provides descriptions of healthcare databases which contribute to EUROmediCAT.
Congenital Anomaly Registries contributing to central database & Healthcare Databases
Organisations that contribute both through congenital anomaly registries and healthcare databases are highlighted in green on the map and below.
Belgium, Antwerp
Provinciaal Instituut voor Hygiene, Kronenburgstraat 45, B-2000 Antwerp, Belgium
Dr Elly Den Hond [email protected]
Croatia, Zagreb
Children's Hospital Zagreb, Medical School University of Zagreb, Croatia
Dr. Ljubica Odak [email protected]
Denmark, Odense
Paediatric Department Hospital Lillebaelt, Kolding Sygehusvej 24, DK -6000 Kolding Denmark
Dr Ester Garne [email protected]
France, Brittany
University Hospital, Department of Neonatology, Rennes, France
Dr Florence Rouget [email protected]
France, Ile de la Reunion
Registre des Malformations Congenitales de la Reunion, Chu Sud Reunion, St Pierre, Ile de la Reunion
Lea Bruneau l[email protected]
France, Paris
INSERM U953, Hopital Saint Vincent de Paul, 82 av Denfert-Rocherau, 75014 Paris, France
Dr Babak Khoshnood [email protected]
Nathalie Lelong - Acting Registry Leader for remaPAR (Paris Registry of Congenital Malformatoins) [email protected]
Germany, Saxony-Anhalt
Dr. Anke Rissmann [email protected]
Ireland, Cork & Kerry
Health Service Executive, Dept of Public Health, Floor 2, Block 8, St Finbarr's Hospital, Douglas Road, Cork, Ireland
Dr Mary O’Mahony [email protected]
Malta
Malta Congenital Anomalies Registry, Directorate for Health Information and Research, G'mangia Hill, G'mangia, PTA 1313, Malta
Dr Miriam Gatt [email protected]
Netherlands, North
University Medical Center Groningen, P O Box 30.001, 9700 RB Groningen, The Netherlands
Dieuwke Broekstra [email protected]
Poland
Poznan University of Medical Science, Dept of Medical Genetics, Ul. Szpitalna 27/33, 60-572 Poznan, Poland
Prof Anna Latos Bielenska [email protected]
Poland - Wielkopolska
Poznan University of Medical Science, Dept of Medical Genetics, Ul. Szpitalna 27/33, 60-572 Poznan, Poland
Prof Anna Latos Bielenska [email protected]
Spain, Basque Country
Registro de Anomalías Congénitas de la Comunidad Autónoma del País Vasco (RACAV). Departamento de Salud del Gobierno Vasco; Dirección de Planificación, Ordenación y Evaluación Sanitarias; Donostia-San Sebastián 1, 01010 Vitoria-Gasteiz (Spain)
Maria del Henar Sampedro Garcia [email protected]
Switzerland, Vaud
Registry EUROCAT-Vaud, Department of Woman-Mother-Child, Maternite, CH-1011 Lausanne, Switzerland
Joanna Sichitiu [email protected]
Ukraine
OMNI-Net Ukraine Birth Defects Program, 36, 16 Lypnya Str. Room 709, Rivne 33028, Ukraine
Dr Natalya Zymak-Zakutnya [email protected]
Finland
Finnish Institute for Health and Welfare (THL), Mannerheimintie 166, Helsinki, FI-00271
Mika Gissler (Medical Birth Register) [email protected]
France, Toulouse
EFEMERIS, Department of Medical Pharmacology, Faculty of Medicine, Université Paul Sabatier Toulouse, Centre Hospitalier Universitaire de Toulouse, INSERM CERPOP
Dr Christine Damase-Michel [email protected]
Norway
PharmacoEpidemiology and Drug Safety Research Group, University of Oslo, Postboks 1068 Blindern 0316
Prof Hedvig Marie Egeland Nordeng [email protected]
Sweden
Institution of Clinical Sciences, Dep of Obstetrics and Gynecology, University of Lund, Biskopsgatan 9, 223 63 Lund and Swedish National Board of Health and Welfare, Stockholm
Prof Karin Källén [email protected]
UK
University of Bath, Claverton Down, Bath, UK, BA2 7AY
Dr Rachel Charlton [email protected]
Congenital Anomaly contributing to central database & Healthcare Databases
Italy, Emilia Romagna
Registro IMER - IMER Registry (Emila Romagna Registry of Birth Defects), Center for Clinical and Epidemiological Research, University of Ferrara, Azienda Ospedaliero - Universitaria di Ferrara , Corso Giovecca 203, 44121 Ferrara (Italy)
Ms Amanda Neville [email protected]
Italy, Tuscany
Congenital Defects Registry of Tuscany, Epidemiologia delle Malattie Rare e delle Anomalie Congenite (Epidemiology of Rare Diseases and Congenital Anomalies), Istituto Fisiologia Clinica CNR/Fondazione Toscana "G. Monasterio", Via Moruzzi 1 56124 Pisa, Italy
Anna Pierini [email protected]
Spain, Valencian Region
Dr Clara Cavero Carbonell [email protected]
UK
Congenital Anomaly Register & Info Service, Level 3 West Wing, Singleton Hospital, Sketty Lane, Swansea, Wales, UK, SA2 8QA
Mr David Tucker [email protected]
Swansea University, Singleton Abbey, Singleton Park Campus, Sketty, Swansea, Wales, UK, SA2 8PP
Dr Sue Jordan [email protected]
Partner Affiliations
|
Name
|
Affiliation
|
ORCID
|
|
Maria Loane
|
Institute of Nursing and Health Research, Ulster University, Belfast, UK
|
0000-0002-1206-3637
|
|
Helen Dolk
|
School of Medicine, Ulster University, Belfast, UK
|
0000-0001-6639-5904
|
|
Mika Gissler
|
THL Finnish Institute for Health and Welfare, Department of Knowledge Brokers
|
000-0001-8254-7525
|
|
Joan Morris
|
Population Health Research Institute,
St George’s, University of London, London, UK
|
0000-0002-7164-612X
|
|
Amanda J Neville
|
IMER Registry, Centre for epidemiology and clinical research, University of Ferrara and Azienda ospedaliera e universitaria di Ferrara
|
N/a
|
|
Clara Cavero Carbonell
|
Rare Diseases Research Unit, Foundation for the Promotion of the Research in Healthcare and Biomedicine, Valencia, Spain.
|
0000-0002-4858-6456
|
|
Dieuwke C Broekstra
|
Department of Genetics, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands |
0000-0002-7134-7007 |
|
Anna Latos-Bielenska
|
Chair and Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland
|
0000-0002-9152-1674
|
|
Alessio Coi
|
Unit of Epidemiology of Rare Diseases and Congenital Anomalies, Institute of Clinical Physiology - National Research Council, Pisa, Italy |
0000-0002-9816-3144 |
|
David Tucker
|
CARIS, Public Health Knowledge and Research, Public Health Wales, Swansea, UK
|
0000-0003-3077-5918
|
|
Sue Jordan
|
Dept of Nursing, Faculty of Medicine, Health and Life Science, Swansea University
|
0000-0002-5691-2987
|
|
Ingeborg Barisic
|
Children's Hospital Zagreb, Centre of Excellence for Reproductive and Regenerative Medicine, Medical School University of Zagreb, Zagreb, Croatia
|
0000-0002-9085-6747
|
|
Anke Rissman
|
Malformation Monitoring Centre Saxony-Anhalt, Medical Faculty Otto-von-Guericke-University Magdeburg, Leipziger Strasse 44, 39120 Magdeburg, Germany
|
0000-0002-9437-2790
|
|
Lea Bruneau
|
CHU REUNION ST PIERRE, Reunion Island
|
tbc
|
|
Hedvig Nordeng
|
Pharmacoepidemiology and Drug Safety Group, Department of Pharmacy, Faculty of Mathematics and Natural Sciences, University of Oslo, Oslo, Norway
|
0000-0001-6361-2918
|
|
Christine Damase-Michel
|
Pharmacologie, Faculté de Médecine, Université Toulouse III,
Centre Hospitalier Universitaire,
INSERM, Center for Epidemiology and Research in POPulation health (CERPOP),
Toulouse, FRANCE
|
0000-0001-5018-0108
|
|
Elly Den Hond
|
Provincial Institute of Hygiene (PIH), Antwerp, Belgium
|
0000-0002-3909-6877
|
|
Joanna Sichitiu
|
Department of Woman-Mother-Child
University Hospital Center CHUV
Lausanne , Switzerland
|
tbc
|
|
Rachel Charlton
|
Department of Pharmacy and Pharmacology
University of Bath, Bath, UK
|
0000-0001-7360-2334
|
|
Ester Garne
|
Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark
|
0000-0003-0430-2594
|
|
Babak Khoshnood
|
Centre de Recherche Epidémiologie et Statistique - Inserm, Université de Paris, UMR 1153
DHU Risques et Grossesse
Maternité Port-Royal
|
0000-0002-4031-4915
|
|
Anna Latos-Bielenska
|
Chair and Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland
|
0000-0002-9152-1674
|
|
Miriam Gatt
|
Directorate for Health Information and Research, Ministry for Health, Malta
|
0000-0003-1557-9919
|
|
Florence Rouget
|
Brittany Registry of congenital anomalies, CHU Rennes, Univ Rennes, Inserm, EHESP, Irset (Institut de recherche en santé, environnement et travail) - UMR_S 1085, F-35000 Rennes, France
|
0000-0001-5514-0893
|
|
Mary T O’Mahony
|
Department of Public Health, Health Service Executive – South, St Finbarr’s Hospital, Douglas Road, Cork, Ireland
|
0000-0003-0574-7579
|
|
Henar Sampedro Garcia
|
Department of Health of the Basque Government, Vitoria-Gasteiz, Spain
|
0009-0004-5698-3365
|